We are calling for the government to:
Integrate EDS and HSD with other overlapping conditions such as PoTS, Mast Cell Activation, ME/CFS and Long Covid, into NHS service specifications, long term conditions strategies, guidelines, templates and clinical frameworks.
Commit to more integrated, cross-specialty approaches across primary and secondary care.
Support and train healthcare professionals linked to the integrated service specifications.
Create a national multi-disciplinary team for CCI (craniocervical instability).
This is urgent. We need as many MPs as possible to attend the debate to have our voices heard.