Contact your MP to ask them to attend the Westminster Hall debate on 'Outcomes for CCI and EDS' on the 26th March

Let's raise awareness of EDS and HSD in Westminster and 'Make it Matter!'

We are calling for the government to:

  • Integrate EDS and HSD with other overlapping conditions such as PoTS, Mast Cell Activation, ME/CFS and Long Covid, into NHS service specifications, long term conditions strategies, guidelines, templates and clinical frameworks. 

  • Commit to more integrated, cross-specialty approaches across primary and secondary care.

  • Support and train healthcare professionals linked to the integrated service specifications.

  • Create a national multi-disciplinary team for CCI (craniocervical instability). 

This is urgent. We need as many MPs as possible to attend the debate to have our voices heard. 

1,584 people have emailed their representatives - can you help us get to 2,000?