Email your MS: Publish the primary care pathway for EDS and HSD in Wales

People with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) in Wales continue to face long delays, limited support, and barriers to diagnosis and care. A new NHS pathway is ready to use but it still hasn’t been published.

A new primary care pathway for EDS and HSD has already been developed by NHS Wales and EDS UK. Based on the EDS UK GP Toolkit, it was created by a multidisciplinary team across NHS primary and secondary care and is ready to be used by GPs across Wales.

This pathway could help improve diagnosis, increase GP confidence, and reduce the need for patients to travel outside Wales or pay privately for care.

But despite being ready, the pathway has still not been published.

We need Members of the Senedd to ask why.

Enter your postcode to email your MSs and call for urgent publication of the EDS and HSD primary care pathway. Diolch!